Comments on: RareShare: A Community For People With Rare Medical Problems

By: اناشيد

اناشيد — Thu, 09 Jul 2009 01:58:11 +0000

thanxs post

By: اناشيد

اناشيد — Thu, 09 Jul 2009 01:57:23 +0000

I don’t know of a site that doesn’t have customers that don’t die. =(

By: Merry Christmas ! Latest Important Articles On The Web - Dec. 24 | 4 Free On Internet

Sat, 28 Feb 2009 22:44:54 +0000

[...] # TechCrunch.com – RareShare: A Community For People With Rare Medical Problems [...]

By: crusher

crusher — Fri, 09 Jan 2009 08:04:37 +0000

any more better site?

By: Web 2.0 Sammelalbum - Web2Null - Rareshare

Web 2.0 Sammelalbum - Web2Null - Rareshare — Mon, 29 Dec 2008 15:54:42 +0000

[...] Erkrankungen, in denen man Informationen und Unterstützung finden kann. http://www.rareshare.org via: TechCrunch "Rareshare" bookmarken oder [...]

By: links for 2008-12-27 « Clint’s blog

links for 2008-12-27 « Clint’s blog — Sat, 27 Dec 2008 18:04:52 +0000

[...] MEDICAL: RareShare: A Community For People With Rare Medical Problems Seems like this is a site some people could really use. (tags: medical rare problems RareShare TechCrunch news articles) [...]

By: Dave

Dave — Fri, 26 Dec 2008 20:58:51 +0000

I visit a ton of sites everyday and TC by far has the most spam. I don’t know why that is but it really reflects poorly on this site.

By: links for 2008-12-26 « Clint’s blog

links for 2008-12-26 « Clint’s blog — Fri, 26 Dec 2008 18:00:58 +0000

By: Someone

Someone — Fri, 26 Dec 2008 13:48:12 +0000

BULLSHIT.
Where is the “Report Comment” Tab/Button ?

By: Simon

Simon — Fri, 26 Dec 2008 04:00:02 +0000

That’s completely different than this one…and lacks most diseases

By: skooter

skooter — Fri, 26 Dec 2008 03:09:25 +0000

patientslikeme.com is better and already established.

By: arap şükrü

arap şükrü — Thu, 25 Dec 2008 12:42:53 +0000

in my opinion this is a great idea.. congrats to david..

By: » Rareshare, comunità per persone con malattie rare

» Rareshare, comunità per persone con malattie rare — Thu, 25 Dec 2008 07:24:27 +0000

[...] Via | Techcrunch.com [...]

By: Rareshare, comunità per persone con malattie rare · Commenta la tecnologia, la telefonia, i software

Thu, 25 Dec 2008 07:14:56 +0000

[...] Via | Techcrunch.com [...]

By: wisdom

wisdom — Thu, 25 Dec 2008 06:23:10 +0000

hmm what happens when you are the only one with the disease..

By: Ravi

Ravi — Thu, 25 Dec 2008 05:39:19 +0000

Why only for rare medical condition? I have a condition that is not rare but still has no solution in western medicine. I have heard rumours that there are some grandma solutions but have not found one that works for me. I would be happy to see what other people have found.
Also, I had allergies. Every morning my nose used to run and I would sneeze for hours. Doctors asked me to take antihistamine for the rest of my life. But fortunately one day I myself made a medicine for me. I was 50% improved in 24 hours and in a few weeks I was 100% cured – no medicine, life is so much better. I would like to share such solutions with others.
Anybody from rareshare reading?

By: RareShare Gets Crunched » The Creative Connector - Connecting Ideas in Entrepreneurship and Venture Capital

Wed, 24 Dec 2008 21:54:24 +0000

[...] What an exciting holiday gift — a nice write-up about RareShare on TechCrunch. Feel free to check it out here. [...]

By: Rareshare Blog » Blog Archive » RareShare got Crunched

Rareshare Blog » Blog Archive » RareShare got Crunched — Wed, 24 Dec 2008 19:40:11 +0000

[...] We’re extremely excited about the RareShare write-up on TechCrunch. Check it out here. [...]

By: John Nols

John Nols — Wed, 24 Dec 2008 19:23:17 +0000

I think this is a wonderful concept. As more and more people hear about RareShare, I’m sure it will become more useful than Yahoo groups or Ning. Organizations like the one above would be wise to contact RareShare and see how they can work with them while they’re still young and growing…

By: Bill Strong

Bill Strong — Wed, 24 Dec 2008 17:39:35 +0000

My 14 month old daughter has a rare, terminal disease called Spinal Muscular Atrophy (SMA). In our experience with SMA, sites/forums such as these exist — even for rare diseases. After spending some time on RareShare, my opinion is that Ning.com provides a more robust forum and platform for information sharing. For example, http://www.SMASpace.com, which was started on the Ning platform. Just my $0.02.

By: Mark

Mark — Wed, 24 Dec 2008 16:55:32 +0000

I have heard a lot of positive things about this being a great resource for people who can’t depend on a foundation or charity to provide links or discussion on similar medical rarities. With that said, however, it could face a lot of the same growth challenges that healthcare discussion boards faced early on, in that people are hesitant to discuss their medical situations openly, especially if it is something that makes them self conscious. Also, there are even more privacy concerns on the side of the healthcare providers; many docs are already hesitant to accept data from Microsoft Vault or Google Health. I know this is different, but using an open website as a medium to gather (and aggregate) healthcare information is not widely accepted in a clinical setting. Some of that has changed, but I’m not sure what the sustainability of this will be in a clinical application setting. It is a great connecting and information resource though that could provide a lot of peace of mind for many people. No doubt traffic and number of users will grow steadily in the near term.

By: Milton

Milton — Wed, 24 Dec 2008 16:38:35 +0000

I thought you guys at TC do not tolerate spam. What about the Chinese idiot spamming all over your site?
Hello, anybody awake out there?

By: jas

jas — Wed, 24 Dec 2008 16:29:52 +0000

Get rid of that idiot above who’s spamming………thick F***in tosser.

By: Imad-ud-din Saqib

Imad-ud-din Saqib — Wed, 24 Dec 2008 15:13:09 +0000

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By: David Isserman

David Isserman — Wed, 24 Dec 2008 14:20:30 +0000

Jason,

Thanks for the nice write-up!

David
david@rareshare.org